tag:blogger.com,1999:blog-9065983917848267819.post7557149223846632142..comments2023-05-03T03:33:07.157-07:00Comments on Brandt's Beacon--Celebrating Two Years!: Last Week before CharlestonBrandt's Beaconhttp://www.blogger.com/profile/14067514811366826972noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-9065983917848267819.post-12458757812364821102010-05-19T08:55:29.057-07:002010-05-19T08:55:29.057-07:00AWW I wanted to be the heart mom to meet you and s...AWW I wanted to be the heart mom to meet you and show you around Charleston. Someone beat me to it! My son is a miracle and didn't follow any of the standard HLHS protocols though. So I don't know who much I could tell you about the stress and anxiety of a newborn having the Norwood. We took him home on hospice and were told he would survive 24-48 hours. I used to read the verse you have in your blog title..."I know the plans I have for you..." and think about the promise of his future. Our God never forgets a promise, 4 months later we had the first open heart surgery (PA bands) and we're now at 6 months waiting for his Glen. We have a wonderful cardiologist at Children's hospital and it seems like they have become an extended family for us. You are very blessed to have the support or family friends and church. My boyfriend and I are pretty much on our own. We are also involved with crossbridge, but I've only seen Melissa Altman once. I have two older daughters (14 and 11) who can't get enough of their brother. It's been difficult for them to adjust to not having me always available and even needing their help around the house. But it's a growing experience for them too. Well sorry my "comment" was so long. Please find me on blogspot...Vance's spot, or facebook- Melissa Sahlmann or email melissasahlmann@yahoo.com. I'll be at children's on the 26th, thinking of you and Brandt.Melissahttps://www.blogger.com/profile/13292660136859606156noreply@blogger.com