Saturday, July 17, 2010
Brandt has had a good week -- 6 weeks postsurgery as of Tuesday!! Feeding him continues to present many challenges. About the time we think we've figured out when he will or will not projectile vomit, he completely reverses the pattern. Hence the nickname from Glenn, The Burpinator. After being doused in spit several times, Glenn just started tying a blanket around his neck when he's holding him. Hey, if it works . . .
I continue to marvel at how well he's doing, especially as we follow more heart babies we come in contact with. No matter the challenges he's facing, or my temptation to be frustrated that we have such a long road ahead of us, every bit of seeing a living breathing miracle in front of me as I spend time with him reminds me of God's grace. And I hear this from many of the families going through difficult recovery times, and even with heart-rending tenderness from grieving families whose little ones have gone on to be with the Lord. Last night, Brandt had a horrible episode--probably one of the worst since we've come home--where he threw up through his nose and stopped breathing. We've learned to sit him up quickly and make sure his nose passages clear, but when he turns that awful blue color it scares me so badly. And reminds me that none of us know how long our lives here on earth may last . . . and the importance of how we spend that time . . . and the joy of one day meeting our Savior face to face. I cannot imagine life without this dear little one already, but praise God for a daily reminder of His goodness and greatness, no matter the joys or sorrows of that daily life!